Karma coming my way

Guest speaker on July 8 at The Deck Cafe will be Brian Summerfield who has cycled 25000 kms to raise money for Tibetan children. His excuse for not coming to the Shrek movie was that he had more important things to do... See photo! Why not Google Brian and see what he did <click>.

Brian has real life experience cycling long distances, and it will be interesting to hear his words on Sunday July 8th! Bookings are going fast. If you are serious about wanting to come: Tickets are $60 please call The Deck Cafe ASAP on 03 6427 7188 to book!

And while I got your attention, here is the freshly designed postcard you might get in the mail one day if you are lucky! It will have sweat stains on it and a little circle to indicate where we are!

Preparation Update

We have ordered information cards for the ride! It is an interesting looking card with this website on it, a USA phone number that will be with us along the way and our mailing address. The card is not exactly designed by an artist, but it is the best we could do and carries the right information (we hope). Also, it did not cost a fortune...

The USA phone number is (571) 281-1426 and should forward to whatever phone we will have on us. You can also speak to us via Skype along the way using my ID: waltervanpraag This Skype ID should also connect to whatever mobile phone we have on us. We will turn the phone off when we sleep, so don't worry about the time difference.

The dotted guidelines won't be on the card!

The camcorders have arrived, and we are test-driving them. All sorts of other gadgets have arrived, like a hard disk drive for the digital camera footage, more gadgets are still on order; UV and polariser filters, wireless microphones... It is not cheap to get all the gear together!

Another 25 letters went out in the mail today to local businesses asking for items for the dinner/auction at The Deck Cafe Restaurant on July 8. If anyone has anything we can put in the auction please email me! cofe@cotu.biz

Mad Bomber supporting The Great COFE

The Madbomber Hat Company has pledged their support for our ride and documentary! They are proud to be associated with a 'Mad Dutchman' riding a push-bike through Europe for Cystic Fibrosis Awareness and they are providing funds for us to ensure a nutritious diet and the occasional soft mattress for the team.

To further help us out they are sending us some Mad Bomber Hats for the dinner auction!

See my Amex Members Project

Click on the banner to see it.

Ben Curtis performing at Dinner Auction

With the help of friends at the Tasmanian Ambulance Service we have secured Ben Curtis to play at our planned Dinner Auction: The Deck Cafe Restaurant.

Ben has been in many great bands, but now Ben has gone solo with his guitar and didgeridoo. Ben has played many high profile shows including Tasmusic showcase events and an Ozgreen Fundraiser.

Ben Plays an ecclectic style of indie infused with pop. His Melodies are catchy and his live entertainment is truely unique. Ben is volunteering his services for Cystic Fibrosis Awareness!

One of the songs Ben sings is called Breathe, that may just have to be the title track for the 'Coughing the Distance' documentary! Who knows he might even write one called 'Coughing the Distance'!

Ben music: http://www.myspace.com/bencurtissolo

First Aid Kits from Freney

Our COFE Medic David has been given first aid kits from Freney First Aid.

The COFE Team is very proud to have an Australian company sponsor us, and we are very grateful for their generous contribution to the team.

Freney First Aid arranges First Aid and Trauma Management Training Courses in Australia. Visit their website: http://www.freney.com.au/!

Patagonia Update

Yes, we have been offered Patagonia clothing! We are very excited and are busy assessing their Spring 2007 range for the ride. Will sure be looking good on that silver screen!

Also need to tell you that we are in negotiations with Kevin Shepit, an award winning cinematographer from Canada! If we can get him along to help us film and perhaps help produce we will be onto a winning documentary! Kevin has commitments in mid September so cannot complete the entire ride, but boy would we like his company. Kevin has just completed a documentary on homeless people in Vancouver, and he might just fit us into his schedule.

We made bookings for excellent hotels in Amsterdam (where we need to pick up our support vehicle) and Paris. We managed to get very favourable rates and are paying not much more then we would in a youth hostel! Great to see things going our way. We like to see one hotel chain offer us a deal on accommodation, that would be nicer then chasing up deals for each night! Recommendations would be welcome!

Cindy Signs Up!

It has been confirmed that we have a spare support driver for the hardest part of our trip! Cindy Braz, Hash House Harrier from the Devonport Hash and hairdresser by day, from Turner's Beach in NW Tasmania will meet us in Vienna (27 August) and help us through Austria, Hungary, Serbia, Croatia, Romania and Bulgaria into Turkey to our final destination of Istanbul on Saturday 6 October 2007. Our entire proposed route schedule is <here>.

Having a spare driver means that Troy, the official driver/mechanic for the Great COFE for Cystic Fibrosis, can get on his bicycle and help us push up the hills! It also means an extra hand filming footage for the documentary!

Speaking of documentary, we are currently in communication with Kevin Shepit, adventurer and cinematographer from Canada, who may be able to join us for a month or so. Kevin may also be able to produce the documentary! He recently completed a documentary on homeless people in Vancouver.

I am one of the oldest!

Another article hits the press!

I never tell people I am one of the oldest, but it keeps on getting repeated in the press. Children born with CF in the 1990s statistically have a 50% chance of living over 35 years of age. When I was diagnosed in 1975, when I was 10 years old, I was not expected to live past my teens, so in that respect I have done very well. I do know of at least two people with CF older than me in Tasmania; take Mark Cage (past president of the Cystic Fibrosis Association of Tasmania!) he is in his 5th Decade and doesn't even look his age!



Cystic Fibrosis is one of the most common life-threatening inherited conditions. It is caused by a defective gene that clogs the internal organs, especially the lungs and digestive system, with thick sticky mucus resulting in chronic infections and inflammation in the lungs and difficulty digesting food. In the Caucasian race one person in 25 carries the faulty gene, and if both parents carry the gene, a newborn has a 1 in 4 chance of having CF.

The life expectancy of CF patients has been increasing over the past 40 years. Studies show that life expectancy of children born today will exceed 40 years. Life expectancy of individuals with adequate pancreatic function can be more than 50 years.

In the UK, cystic fibrosis birth is about 1 in 2400 and 4% of the people are cystic fibrosis carriers(source <here>).

Devonport Fundraiser success

The Devonport Shrek Movie was another awesome event. Thanks to the great effort people put into ticket sales we managed to get 150 odd people to come and made close to $1800 profit!! All people involved were fantastic!

Plenty of beer from Cascade and Boags, most groceries were sponsored by Woolworths, some food was donated by The Pizza Hut, Banjos and Bakers Dozen, a dozen bottles of fine Tasmanian wine were donated by Tiger Ranch Wines! Door prizes from Coles and Forestry Tasmania, chocolates from House of Anvers, sweatbands from Canoe 'n Surf, petrol vouchers from Rio Tinto... Cheese came from the Burnie Hash House Harriers!

And the press showed their face too!

More Press!

Big Week! Got into the RACT magazine for June!


And in the Sunday Examiner too!

Pretty amazing!

Fundraising Dinner and Auction

On Sunday July the 8th, starting at 6pm, there will be the last and final Fundraiser for The Great COFE for CF. Completely free of charge to us The Deck Cafe in Devonport has arranged for their suppliers to provide the food and the wine for three courses with matching wines. Even the staff is volunteering their night! My jaw dropped when Troy the owner called to tell me this!

The auction has attracted some excellent donation for auction. Amongst the list of items for auction we have:

• Two signed books by Tasmania's number one landscape photographer Ian Wallace (http://www.ianwallace.com.au/)
• Two signed books by our Tasmanian Mountain Climber Paul Pritchard (http://www.paulpritchard.com.au/)
• Three signed copies of Tasmanian writer Alice Hansen's Devilish Tale (children's book) - proceeds of this book have already gone into the Tassie Devil Appeal!
• The first ever children's book covering Cystic Fibrosis: Leah Orr's Kyle's First Crush, signed by Leah! More info <here>.
• A colorful oil painting by Liga Veska (http://www.veska.da.ru/)
• Two $200 vouchers for luxury accommodation on Hollowaysbeach just out of Cairns (http://www.go4us.com.au/)
• A day trip for two to Cradle Mountain with Cradlecoast Tours (http://www.cradlecoasttours.com.au/).
• One Day all expenses paid Bicycle Ride with Walter along the famed Tasmania Trail (http://www.vanpraag.info/mlj/tastrail.html)!
• A case of mixed wines from Dunelm Wines (WA) Barking Dog series: www.denmarkwa.asn.au/wineries.htm
• A pearl set of earrings made and designed by our own Tasmanian Judy Tierney from Sandy Bay.

New additions:

• Power Inverter 1200 Watt 12V DC to AC power for the campers out there.
• Manfrotto Tripod for cameras
• Signed and framed photograph of Suzy Balogh - the first Australian woman to win an Olympic shooting gold medal!

Too many more to list for now! Keep an eye on the website (http://www.cofe4cf.blogspot.com/)!

Tickets are $60 per head, and are selling much quicker then anticipated! Call The Deck Cafe ASAP to secure a seat. Phone: 03 - 6427 7188.

<SEE THE REST OF THIS WEBSITE>

Hobart Fundraising Movie

The Hobart Fundraising movie with Shrek was a great success. We had a full theatre thanks to Rowan and Jenny from TACFU and Dace Shugg's organising and all the people that sold tickets, arranged door prizes, arranged nibbles and drinks, made sandwiches and bribed their friends to come. Door prizes and raffle prizes were donated by Rio Tinto, Forestry Tasmania, Judy Tierney, the Ball and Chain Grill,... Food was provided mostly by Coles and Cascade and volunteer sandwich makers, but also by Banjos, Boags and Woolworths!

It was a super event complete with Shrek cutouts for people to stick their heads in for photographs! Almost $2300 was raised by this event alone. Next on the agenda is the Devonport movie, on Sunday!

An Artists Impression

Here is roughly what we hope the vehicle (this is a similar vehicle) to look like. The badge on the bonnet you can't really see here is the COFE 2007 logo. Martin is working on it for us!

Training Photos

Just for fun :

Sunday Tasmania Coverage

I was interviewed by The Mercury last week and got into the Sunday Tasmanian on page 3! It said I was one of the oldest Cystic Fibrosis sufferers! I don't think I 'suffer' particularly, and I am sure I am not one of the oldest! But I am well over the average life expectancy I guess...

Pre-sales for documentary needed

OK, Here is the run-down.

I need to finalise a director for the documentary we are making. The
director needs to help us with the 'treatment', and help us pre-sell the
documentary to a TV network. This will give the network national rights to
say 3 broadcasts over a five year period.

The pre-sell fee will help us fund the high quality camera equipment (complete with helmet-cam and bike tripod) which we need to purchase soon!!

Once we return and the director puts the documentary together we can then get a distributor to market the documentary to international networks. The money we will receive from this will first of all refund the airfares for the voluntary crew (least I can do for their professional services!) and the rest we could delegate to CF research!

We still have a large space on our sexy VW Caddy support vehicle! Where are all the major sponsors? Who needs international press? The pharmaceutical companies do not need it, they have not come to the party. So we need corporate sponsors of any kind!

Please apply within! <click>

Mothers day Radio Interview!

Listen to me on Australia All Over! Mothers' Day, this Sunday around 9am! This was arranged by Judy Tierney. Judy also kindly managed to get me on Tim Cox's Statewide Morning show last month!

In the mean time I keep on training! Today I rode my bike up and down many local hills and found this curious paddock covered in spiderwebs! The fences were also full of them and the road, adjoining the fences, was streaming with them! I gave a few spiders and lots of spiderwebs a ride of their life! Somebody told me that the roads in Tasmanaia are obviously not well used with all those cobwebs!


After one puncture (not spider related) I got home safe!

Trike?

Went to AGFEST in Carrick on Friday, the Agricultural Show. Was fun!
Saw these great KMX trikes. Imagine us riding them from Paris to Istanbul. We'd do it! For sure!Maybe they should lend us four of these! Imagine the publicity they'd get! I want one of these trikes!

Training in Action

Things are moving along. Getting fitter and fitter. Doctor wasn't too happy about my lungs and has put me on different drugs. I do feel a million dollars these days.



















Here we are out on Kelsey Tier, behind our house, on a nice walk up the hill. Katherine is not afraid to get dirty on our training walks either:




















In the meantime we are arranging door prizes for the fundraising movie nights that have been arranged.

The Hobart Poster went out and up on noticeboards everywhere, and then the cinema in Hobart decided they had to change the date and price!!! Could you believe it? Contracts signed and sealed and then they change it on you? Rowan in Hobart is arranging it all for me, and he is sorting it out. I hope we can keep the advertised date! Considering you need to pay for each seat in the cinema I'd hate to run at a loss thanks to the cinema's mistake! Thanks Eastlands Village Cinema (THEY BLAME THE MOVIE PRODUCTION HOUSE!).

CMax Devonport is still all go for the advertised time!