STOP PRESS Read all about it! The next adventure: www.coughing4cf.com
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This website was the blog we kept...
Thursday, June 10, 2010
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YOUR HELP IS NEEDED
Read All About It!
To read the whole blog right from the beginning why not go here: www.vanpraag.info/blog. There we have ordered the articles right from the start especially for those of you who can't wait to read the book!
Click here for route detail. This is a blog-site, so for the beginning of the ride start in July, then August, then September and October 2007. For info on the preparations go to earlier articles! This site has a lot of photos, please be patient with loading times.
Throughout the 72 day ride film maker Lucas Li from Canberra shot 50 hours of digital video footage out of which we are now making an inspirational documentary on a shoestring budget. The reason we make a documentary is to show people that living with CF at home is not all that much different from living with CF on the road. We will name the documentary; Coughing the Distance.
Coughing the Distance is intended to provide inspiration and encouragement to other people from the CF community. The message is that despite our medical dispositions we can still do some pretty exciting stuff! This documentary is going to be positive, fun and show how with CF and despite a limited lung capacity we can have a great quality of life! We also hope to mail a copy of it to all CF clinics in the world, complete with a small book about the journey.
I have had CF all my life (it is after all genetic!) and I know my body, the medicine, my problems, the complications and how to deal with the situation. When riding this distance across Europe I looked after myself much the same as if I was at home, and the documentary will show how coping with CF does not have to stop you from leaving your home!
How it all started...
I (contact me) was born in Holland almost 42 years ago, diagnosed with CF at age 10 and moved to the clean air in Australia when I was 13 years old.
Just over a year ago I decided to cycle the Orient Express in Europe from Paris to Istanbul. When my health advisor/doctor Dr. David Reid heard about this idea he suggested I do the 4000km ride for CF awareness and publicize it. One thing led to another, and The Great COFE for Cystic Fibrosis was born.
Coughing the Distance will be 45 minutes and will show myself and my team with our Batavus mountain bikes and tents, managing CF on the road and maintaining an active lifestyle.
HELP!
With the help from supporters such as you we can help other people with CF experience a different attitude on living with Cystic Fibrosis and provide fresh inspiration and reassurance for young parents with affected children!
Coughing the Distance
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27 comments:
卡爾.桑得柏：「除非先有夢，否則一切皆不成。」共勉！..................................................
you two make a lovely couple!............................................................
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It takes all kinds to make a world..................................................................
Keep in contact. Good Luck..................................................
死亡是悲哀的，但活得不快樂更悲哀。.................................................................
Poverty tries friends.................................................................
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人不能像動物一樣活著，而應該追求知識和美德............................................................
向著星球長驅直進的人，反比踟躕在峽路上的人，更容易達到目的。............................................................
嗨!很喜歡來這欣賞你的作品,幫你推推推當上人氣王唷..................................................................
偶爾上來逛逛，下次不知是否還有緣再進來，先祝您平安順利!!!............................................................
加油-不論如何都支持你............................................................
你的blog超棒............................................................
Never put off till tomorrow what may be done today.............................................................
當最困難的時候，也就是離成功不遠的時候。..................................................
如果擬任為輸贏是最重要的事，那你輸了................................................
Many a true word is spoken in jest..................................................................
More haste, less speed..................................................................
Learning makes a good man better and ill man worse.............................................................
大肚能容，了卻人間多少事，滿腔歡喜，笑開天下古今愁。..................................................
Learn wisdom by the follies of others.............................................................
時間就是塑造生命的材料。．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．．
嗯~蠻不錯耶~~我喜歡 ∩ 3∩............................................................
喜歡自己的另一層意義是「接納自己」。..................................................
財富並非永遠的朋友，但朋友卻是永遠的財富。......................................................................
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